From: Parental understanding of crucial medical jargon used in prenatal prematurity counseling
Original item presented to prematurity experts | Item tested in Round 1 cognitive interviews | Item tested in Round 2 cognitive interviews | Final item |
---|---|---|---|
Neonatal medical team will need to be present at birth | Neonatal medical team will need to be present at birth | Baby specialists will need to be present at birth | The baby specialists will need to be present at my delivery |
Parents can switch to comfort care treatment if complications happen, even if resuscitation is chosen at the beginning. | I cannot stop intensive care treatment for my premature baby if complications happen | Parents have the option to stop intensive care treatment for their premature baby if serious complications happen | Parents have the option to stop intensive care treatment for their premature baby if serious complications happen |
Before 25 weeks, parents can decide if they want full resuscitation or comfort care | What is the highest gestational age when parents can choose not to use intensive care treatment at birth | What is the highest gestational age at which parents can choose comfort care at birth? | What is the highest week of pregnancy at which parents can choose comfort care at birth |
By how many days can the due date change, when the due date is based on a first trimester ultrasound | When the due date is based on an ultrasound performed in the first 13 weeks (first trimester) of pregnancy, by how many days can gestational age vary? | How accurate is your baby’s gestational age if it is based on a first trimester ultrasound? Within ____ days | How accurate is your due date? |
How accurate is your due date if it is based on a first trimester ultrasound? | |||
How accurate is your due date? | |||
May not have any long lasting problems because of prematurity | May not have any long lasting problems because of prematurity | May be healthy later in life | May be healthy as a teenager |