Skip to main content

Table 2 Thematic overview of content; Symptom and needs assessment in the InvolveMe tool

From: Content and system development of a digital patient-provider communication tool to support shared decision making in chronic health care: InvolveMe

Bodily symptoms

Common for both patient groups

NFPAa

RTXb

Pain

Menstruation

Breathlessness

Less interested in sex

irregularities

Swelling

Weakness

Hot flushes/night sweats

Itching

Dizziness

Erection changes

Bowel habit changes

Weight changes

Visual changes

Urinary habit changes

Fatigue

Coordination changes

Thirst

Sleeping problems

Balance changes

Nausea

Psychosocial challenges

Common for both patient groups

NFPA

RTX

Anxiety

Stress sensitivity increased

N/Ac

Depression

Mood disturbances/fluctuations

Irritability increased

Memory problems

Concentration problems Lack of understanding (from

family/friends)

Lack of support (from family/friends)

Guilt towards children

Uncomfortable in social situations

Loneliness

The need for work related support

Common for both patient groups

NFPA

RTX

Work-related understanding

N/A

N/A

Work disability

The job exacerbates health

The need for information

Common for both patient groups

NFPA

RTX

Healthy diet

N/A

Infection prevention

Physical shape improvement

Skin/mole changes

Alcohol

Smoking cessation

Medications side effects

Treatment options

Disease progression

Economic and social rights

Medication prescriptions and certificates

  1. aNFPA Non-functioning pituitary adenomas
  2. bRTX Renal transplant recipients
  3. cN/A Not Applicable