Table 2 Breakdown of pre-DCE workshop discussants by characteristics

Stakeholder role (n= 34)

Number (%)

Patient (predominantly cancers and in one group multiple sclerosis, but also heart disease; diabetes mellitus, heart and retinopathy; non-cancer muscular or skeletal conditions and dementia; sickle cell disease; mental health; sarcoma)

14 (41)

Carer

1 (3)

Consultant/specialist

1 (3)

GP

1 (3)

Nurse

3 (9)

Quality team member

0 (0)

Variety of commissioning roles

2 (6)

Budget holder

0 (0)

Non-executive director NHS patient and public engagement lead

1 (3)

Policy-maker

0 (0)

Academic

2 (6)

Other (an advocate for dementia patients; patients who were also carers/budget holders/academics)

7 (20)

Did not say

2 (6)

Gender

Male

8 (23)

Female

23 (68)

Did not say

3 (9)

Ethnicity

White British

19 (58)

Any other white background

3 (9)

Mixed/multiple ethnic groups: white and black Caribbean/African

2 (6)

Asian/Asian British: Indian

1 (3)

Asian/Asian British: Chinese

1 (3)

Any other Asian background

2 (6)

Black: African

1 (3)

Black: Caribbean

1 (3)

Did not say

3 (9)

Ages

Year of birth

Minimum

1938

Maximum

1988

Mean

1965

Mode

1984